Wednesday, June 17, 2009

work, illness and other distractions

Wow, it has been a while. I don't seem to like writing as much as I used to.
Being sick with Crohn's Disease for almost 4 years now has really changed my life.
I have been on medication everyday since the diagnosis, including Humera, Remicade, Methotrexate, Mesalamine, Prednisone, Flagyl, Levaquin, Ciprofloxacin, 6MP, a Pravastatin drug trial, many, many different types of supplements, and lots of Tylenol. I have stopped taking all the immune suppresive medications, as none of them seemed to work very well. I am now on a 2.5 month antibiotic regimen and am feeling much better. I am able to work more regularly and have been able to do more things in the evenings and on weekends.
Work is going well. I am happy to have a job in this economy.
Angela and I are looking at homes this summer and hope to be in something by Fall 2009. There are some good deals out there but a lot of trash too.
I wish I had something more interesting to write about.

Update: 12/10/2019
With varied symptoms from possible remission to hospitalization for perianal abscess, I have decided to take Stelara and have been on it since June 2019. I had an approx. 500 mg infusion at a clinic in August and 90 mg injections every 8 weeks since. Effects have not been 100%, approx 2 weeks before each of the 8 week injections symptoms return but it seems to work well for the first 6. Over the past ten years I have experienced a 3 year "well" state of health using antibiotics (flagyl and cipro) as needed. I still prefer Flagyl to clear-up issues. I have discovered a bit of a reaction to Vancomicin and prefer to steer clear of it. I have only been hospitalized a few times, have tried probiotics, prebiotics, ginger, digestive enzymes, etc., all with varied effectiveness. The most prevalent issues are intestinal cramping and rectal/anal focused inflamation resulting often with perianal abscess. A warm compress helps to soothe and drain the area but the issue can quickly elevate to sepsis.
Angela and I are in the home in Maryland we purchased in 2010.
This seems important to write about now.